"Registries for Evaluating Patient Outcomes: A User's Guide" published by the Agency for Healthcare Research and Quality (AHRQ) is a landmark federal publication providing key information on developing, operating and evaluating patient registries. The handbook provides tools intended to help evaluate the quality of a patient registry. The handbook is electronically available at AHRQ's website.
Quintiles led the development of the handbook. Quintiles’ Drs. Richard Gliklich and Nancy Dreyer served as the project's principal investigators and senior editors. The work was performed under contract to Outcome through its role as an AHRQ DEcIDE Research Center, a component of AHRQ's Effective Health Care initiative.
The third edition of the Registries for Evaluating Patient Outcomes: A User’s Guide was published in May 2014, representing a significant expansion, from 14 to 25 chapters and features 34 new case examples for a total of 64. The user’s guide was created in collaboration with more than 240 individuals, representing industry, academia, government and patients.
To view the 3rd Edition online, visit www.effectivehealthcare.ahrq.gov